Monday, November 19, 2012

The post I wanted to write

The post I wanted to write went something like this:

"Thank you all for your loving wishes on my last post. On the big day YH cheerfully put on his hospital gown, held the anesthesiologist's hand and waved good-bye to us happily as he walked down the hall to the operating room. His surgery went without a hitch, and he is now up and running as if nothing happened!"

Sounds great right???

Sadly, the reality is not so great.

YH did not put on his hospital gown willingly. He screamed and cried out for me as the anesthesiologist took him away, and I wanted to die on the spot.

YH's surgery *did* go well--and for that I am SO thankful.

 But his recovery is very, very painful. And he is crying most of the time that he is awake, despite being on multiple pain control medications. There is a reason that most kids who undergo similar procedures do so at 6 mos of age; with YH's heightened awareness of his body, and of his bodily functions, the pain is more present for him than it might be for a younger child.

When he moves he is reminded of the pain, and all that he wants to do is sit in my lap and cry on my shoulder. He leans his full weight against me, tries to meld into me, and sobs. I rub his back and make "wuss wuss" noises to him. Tell him he is brave, tell him he is strong. Try to convince him to eat something, anything.

I try to enjoy the sweetness of his body pressed against mine. Try not to be overwhelmed by his sadness. Try not to let him see how much his pain is hurting me too.

In addition to the near-constant crying, YH has had a resurgence of anxiety behaviors. Things like bouncing in his seat or while standing. Rocking back and forth while sitting alone on the sofa. Talking and/or humming constantly, and using repetitive phrases.

These are all behaviors that had faded over the last few months as his need to self-soothe lessened.

Now they are back.
Now they are, once again, the only means for him to control his environment. To try and outrun, outsmart, and outdistance the pain.

It sucks.

We have been in contact with our pediatric urologist and all is progressing normally. We are all doing our best to manage YH's pain and make him more comfortable. As his swelling decreases over the next 48 hours we anticipate big improvements for him. And while his pain is still near-constant, the intensity seems to be waning.

I am hopeful.

1 comment:

  1. I'm so sorry Nora! It is so so very difficult to see your child hurting and feel so helpless. Prayers friend!